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Welcome to Margy Henry's Page

Margy Henry

Margy Henry

We ask, one again, for your contribution to raise funds for research to find a cure for this rare, devastating form of epilepsy. Dravet Syndrome is characterized by frequent, prolonged seizures, developmetal delays, and an increased risk of death (15-20%) prior to adulthood. Treatment options are limited. Brynn, now 7, has struggled valiantly against this disease. She has participated in two FDA sponsored drug trials, but neither drug was effective for her. Brynn has many seizures each week, but remains a fun loving child who lives each day to the fullest while battling this devastating condition.



raised of $5,000 goal

Recent Donations

1. BABetty And David Arnold
2. LLLisa Lord
3. SSSusan Summers
4. MSMaureen Sullivan
5. MTMarilyn Turner
6. TKTish And Kermit
With lots of love from Tish and Kermit

Team Brynn's Bunch