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My 2019 5K for Dravet Fundraising Page

Margy Henry

Margy Henry

Please help me support Dravet Syndrome Foundation by making a contribution to my fundraiser and sharing this page with your family and friends. We are raising funds for research to find a cure for this rare, devastating form of epilepsy. Dravet Syndrome is characterized by frequent, prolonged seizures, developmental delays, and an increased risk of death (15-20%) prior to adulthood. Treatment options are limited. Brynn, now 8, has struggled valiantly against this disease. She has participated in two FDA drug trials,but neither drug was effective for her. Despite the many seizures she experiences, Brynn remains a fun loving child who lives each day to the fullest while battling this devastating condition.

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Comments

$3,510
raised of $4,000 goal
 

Recent Donations

$50.00
1. MSMaureen Sullivan
$50.00
2. DADave And Betty Arnold
Dear Brynn, what a pretty, sweet and very strong, brave girl you are! Love and prayers to you often. So many people are praying for a cure for you and those suffering from DS.
3. SKSharon Koehly
$100.00
4. AMAnne Marsalisi
$100.00
5. JGJean M Greenfield
6. DBDebbie Bowen
May the symptoms lessen for dear sweet Brynn.
Captain

Team Brynn's Bunch

$4,885
$7,000