Login
Edit in profile section

Welcome to the our Family Page for Anna Odlaug

Ted Odlaug

Ted Odlaug

Thank you for visiting.

Andrew and Kimberly blessed us in September 2017 with the birth of Anna Grace. In her short life she has already given us so much love and joy.

After suffering prolonged seizures following her 4 and 6 month vaccinations, Anna was diagnosed with Dravet Syndrome in early May 2018. While shocked and saddened by the news, we are intent to remain optimistic and focus on the reasons for hope, of which there are many.

The mission of DSF is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families. These fundraising efforts will help with this important cause.

The experts admit that in some ways treatment standards are variable, with many prescriptions based on trial and error rather than the specific SCN1A mutation identified in a child. There needs to be more research to correlate mutation with treatment, and better yet a cure.

We raised over $112,000 in 2018. A great start on our $1 million goal. Andrew, who is an accomplished marathoner, ran the Chicago and New York City marathons in 2018 for Anna, Kim and all of the brave Dravet children. He raised over $10,000. Kim's sister Chelsea Nusslock raised over $31,000 with her Platform tennis network (e.g. Fall Brawl and National Charities Paddle Tournament ).

Our family plans to do additional fundraisers in the months and years ahead. Never give up and find a cure is our mantra.Our sincere thanks for anything you can contribute.

This cause is very important to us, and we appreciate all the support we can get for our dear Anna and all the children like her! Together we can make a difference!

Sincerely yours,

The Odlaug and Nusslock Families

  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  

Comments

$114,105.13
raised of $1,000,000 goal
 

Recent Donations

$1,000.00
1. EWElizabeth Wheatley
My heart with with you all. I hold much hope for a cure/treatment with-in Anna Grace's lifetime.
2. LMLouis And Kathleen McGuire
$100.00
3. JLJane Love
$100.00
4. KHKathy Horton Designs
$100.00
5. ?Anonymous
$50.00
6. PCPamela Craig
I too have great hopes and believe that a cure will be found. Pam Craig