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Welcome to the our Family Page for Anna Odlaug

Odlaug Nusslock Brennan

Odlaug Nusslock Brennan

Thank you for visiting.

Andrew and Kimberly blessed our family in September 2017 with the birth of Anna Grace. In her short life she has already given us so much love and joy.

Anna was diagnosed with Dravet syndrome in early May 2018 after suffering from a number of prolonged seizures. Dravet syndrome is a rare and catastrophic form of epilepsy beginning in childhood. While shocked and saddened by the news, we are intent to remain optimistic and focus on the reasons for hope, of which there are many. A video of their journey with Anna and Dravet (April 2019) can be found here: youtube.com/watch?v=bFT-tOf_L7I&feature=youtu.be

The mission of DSF is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families. Our families fundraising efforts will help with this important cause.

The total raised to date also reflects the efforts of other family members. This year Andrew is again running to the Chicago Marathon in honor of Anna. You can donate here or on his page at dravetfoundation.rallybound.org/chicagomarathon/andrewodlaug
Kim's sister Chelsea's fundraising page can be found at dravetfoundation.rallybound.org/fall-brawl and Andrew's sister Eirka's at dravetfoundation.rallybound.org/fearless

Anna's grandfather Ted joined the Dravet Foundation Board in March 2019 to offer his experience and know-how of working in the healthcare industry to the foundation and patient community.

Our entire family is committed to supporting Anna and the work of the foundation.This cause is very important to us, and we appreciate all the support we can get for our dear Anna and all the children like her!

Never give up and find a cure is our mantra. Our sincere thanks for anything you can contribute. Together we can make a difference!

Sincerely yours,

The Odlaug, Nusslock and Brennan Families

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$361,726.68
raised of $1,000,000 goal
 

Recent Donations

$100.00
1. BHBarbara & Tim Hartmann
$100.00
2. KTKevin And Mary Talleur
$700.00
3. JBJames Brennan
Happy Birthday Ted Rose and Jim
$25.00
4. TZTimothy Zilis
$100.00
5. KTKaren & Thomas Teichman
$150.00
6. MNMarsha Nusslock