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Welcome to the our Family Page for Anna Odlaug

Odlaug Nusslock Brennan

Odlaug Nusslock Brennan

Thank you for visiting.

Andrew and Kimberly blessed us in September 2017 with the birth of Anna Grace. In her short life she has already given us so much love and joy.

After suffering prolonged seizures following her 4 and 6 month vaccinations, Anna was diagnosed with Dravet Syndrome in early May 2018. While shocked and saddened by the news, we are intent to remain optimistic and focus on the reasons for hope, of which there are many.

The mission of DSF is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families. Our families fundraising efforts will help with this important cause.

The experts admit that in some ways treatment standards are variable, with treatment regimens based on trial and error rather than the specific SCN1A mutation identified in a child. There needs to be more research to correlate mutation with treatment, and better yet a cure.

We raised over $112,000 in 2018. A great start on our $1 million goal. Our total also includes other family fundraisers. Andrew, who is an accomplished marathoner, ran the Chicago and New York City marathons in 2018 for Anna, Kim and all of the brave Dravet children. He raised over $10,000. Kim's sister Chelsea Nusslock raised to date over $40,000 with her Platform tennis network, and is still working her wonderful network. Andrew's sister Erika also has raised over $6500 with her fundraising page at dravetfoundation.rallybound.org/fearless

At the March 30, 2019 Dance for Dravet event in St. Louis, that was sponsored by the Brennan Family, we raised over $177,000! A video for the event and photos can be found here at dravetfoundation.org/dance-for-dravet-2019

Our family plans to do additional fundraisers in the months and years ahead. Never give up and find a cure is our mantra. Our sincere thanks for anything you can contribute.

This cause is very important to us, and we appreciate all the support we can get for our dear Anna and all the children like her! Together we can make a difference!

Sincerely yours,

The Odlaug, Nusslock and Brennan Families

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Comments

$314,346
raised of $1,000,000 goal
 

Recent Donations

$250.00
1. FHFrank Harmon
Very sorry we couldn't attend the dance and meet the star of the ball - Anna. Our prayers are with you all for a cure!
$25.00
2. ?Anonymous
3. MMike & Sandy Wood
Sorry we had to miss Dance for Dravet, but so happy it was such a tremendous success!
$50.00
4. wnWesley Nichols
Love and Blessing to Anna.
5. JLJane Light
Congratulations on a very successful Dance for Dravet.
$177,946.00
6. DfDancing For Dravet