Login
AL
Edit in profile section

Welcome to April Loutrel's Page

April Loutrel

April Loutrel

This cause is very dear to me, and I appreciate all the support I can get for little sweet Julian and every other child living with Dravet. Together we can make a difference for these wonderful families. Thank you from the bottom of my heart. April

Please read the note from Julian's mom:

Thank you for visiting! This is Julian (3) and big brother Hugo (5). Julian had his first seizure when he was 4 months old. It was 45 minutes long. After a year long barrage of tests (MRI, EEG, genetic testing after battling with our insurance) and waiting, we got the diagnosis of Dravet Syndrome. When you google it, it's scary. There are many and multiple kinds of seizures, developmental delays, motor skills delays, a tendency for it to get worse over time, and a scary thing called Sudden Unexplained Death related to Epilepsy (SUDEP) that steals children in the middle of the night with unknown cause. It has been a wild ride, to be diagnosed with something so rare, and that they know so little about.

In spite of all that, Julian has exceeded expectations at every turn. He is a spunky, energetic, and caring little explorer. He loves his brother, his dog, music, cooking, being outside and riding his bicycle. He has more empathy than any other kid I've met, and will notice and comfort a child crying from across a crowded room.

There's no cure for Dravet Syndrome. And most of the medications to control seizures don't work well. We need more research, and for that I ask you: please spread the word so that more people have heard of Dravet Syndrome ("Dravet" rhymes with "ballet" and "5K"), and if you have a $ to donate that would be amazing.

Dravet Syndrome Foundation is a non-profit that raises $ for research, and provides some help to families that can't afford all the many drugs/equipment/therapies needed. You can read more here: dravetfoundation.org/dsf-funded-research

Comments

$10,025
raised of $10,001 goal
 

Recent Donations

$50.00
1. ACAaron Curry
$25.00
2. CLChuchen Lin
$150.00
3. SMScott Matagrano
$50.00
4. BCBen Cooper
$25.00
5. MDMJT Software Development
$150.00
6. PVPeter Viscardo
Member of

Team Julian

$98,277.06
$100,000