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This is Kate's Story

Kate Haygood

Our Kate was born July 8, 2015. A little red headed, bright blue eyes, bundle of pure perfection. She completed our family of four and gave Madelynn the honor of being a big sister. Kate is our wild child, spending her days climbing, jumping and running. She enjoys eating everything in sight, playing with her babies, singing and coloring. Kate fills our hearts daily with so much joy and so much love. We are so blessed God chose us to be her Daddy, Momma and big sister.

When Kate was 10 months old, she was taking a bath with big sister when she slumped to her side and laid in the water. The evening quickly turned into a call to 911 and a trip to the hospital. All of the doctors looked Kate over and figured she must have slipped in the tub and that she would be just fine. It was not until three weeks later, that we realized exactly what happened that night in the bath tub. While pushing a shopping cart at her baby sitters, she slumped to the ground and began convulsing. After another 911 call, an ambulance ride to the hospital and lots of testing, we were referred to Nemours where we would meet with a pediatric neurologist and be able to receive the best treatment for our girl. Following the third seizure, Kate started medication. We have spent numerous days completing testing, visiting with doctors and spending nights in the hospital.

Recently, we learned that Kate has a genetic mutation that is associated with a condition called Dravet Syndrome. Dravet Syndrome is a lifelong catastrophic form of Epilepsy that includes the potential for many medical complications, including frequent life-threatening prolonged seizures. The current treatment for Dravet Syndrome is extremely limited as the seizures are often refactory to medication. We have since met with a specialist in Miami, at Nicklaus Children’s Hospital, who will work alongside our pediatric neurologist at Nemours, to provide Kate with the best treatment possible.

A diagnosis of Dravet Syndrome has given our life a “new normal”. At times, we are overwhelmed and the fear of the unknown is always present.

Kate’s second birthday is July the 8th. Our dream is to raise as much money as possible for the Dravet Foundation that will allow for much needed research and the medical community to find better treatments and a cure.

This is Kate’s Story.

Thank you for visiting. This cause is very dear to me, and I'll appreciate all the support I can get! Together we can make a difference! Best - Kate

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