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John Keating

John Keating

I am running the New York Marathon to raise money and awareness for DRAVET SYNDROME. This cause is very dear to me, and I'll appreciate all the support I can get!

My daughter, Charlotte Keating (14), has DRAVET SYNDROME which has had quite an impact on her life. The disease is a genetic disorder that causes many different challenges, the most relevant is a refractory epilepsy that is refractory to most therapies and in many cases life threatening. Dravet Syndrome also causes many cognitive, speech and motor delays that impact daily living

Charlotte is fourteen year old girl who despite having such challenges is the strongest and most happy girl I can imagine. She lives everyday in the present and is always there to give you a smile, a hug, and loves singing "Happy Birthday" to everyone. She loves to dance, play baseball, sing, and play dress up. She loves life!

Charlotte is my inspiration and strength and I am running on her behalf to raise money for research. Many of you have been part of our campaigns over the years and together we have made a difference in raising money for research. These monies have made a difference as we have seen significant gains in understanding and potentially helping other children with this terrible disease.

Together we can make a difference!
Best - John & Charlotte

Comments

$9,720
raised of $10,000 goal
 

Recent Donations

$50.00
1. PFPfizer Foundation Matching Gift
Matching gift - Philip Witman
$100.00
2. YLYourCause LLC Trustee For Medtronic
matching gift from Mark Su
$100.00
3. DKDrew Keating
$100.00
4. PWPhilip Witman
John, we're so proud of your dedication and commitment. Philip and Bonnie
5. BSBrian & Amy Shera
Good Luck and kick butt!!
$50.00
6. WEWayne And Ellen