3rd Annual Purple for Penny Open Bar Fundraiser


Join us at Raise New York on Friday, May 10th from 7-9 PM for the 3rd Annual Purple for Penny Open Bar Fundraiser as we raise money and awareness for Purple for Penny and the Dravet Syndrome Foundation!

As many of you know, our friends Greg and Wendy have a daughter, Penny, who is almost 4 years old now.  Penny was diagnosed with Dravet Syndrome when she was 8 months old.  Dravet is a rare, lifelong condition that currently has no cure.  It typically begins with prolonged febrile seizures in infancy and can progress to include many neurological, cognitive, developmental and behavioral complications.  To help manage her seizures she is on a strict ketogenic medical diet, where every meal she eats must be weighed to the 0.1 gram and consists mostly of fats and oils.  While Penny still battles seizures daily, she radiates happiness as she cracks jokes, dances in ballet class, and sings along to Katy Perry.  

In addition to the 2 hour open bar, there will be a specialty cocktail and food specials with proceeds from all going directly to Purple for Penny (benefiting the Dravet Syndrome Foundation to help fund research and support for affected families). We'll also have a silent auction like last year so get ready for some awesome swag!

WHERE: Raise New York, 416 Third Avenue
WHEN: Friday, May 10th  Open Bar 7-9 PM, drinks till whenever!
COST: 
$50 ticket includes two hour (7-9 PM) open bar with well drinks
$100 ticket includes three hour (7-10 PM) premium open bar and one appetizer 

50% of each ticket sold will benefit the Dravet Syndrome Foundation)

THIS PAGE IS FOR DONATIONS ONLY!

Purchase tickets here:
 https://www.eventbee.com/vpurpleforpenny#/tickets





 
 

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Recent Donations

$901.20 SZSerge Zborovsky
Thank you from Raise New York
$35.00 SSansa Stark
$25.00 MHMichael Heffernan
Donation on behalf of Sheila Sobel from Florida!
$50.00 MHMichael Heffernan
We love you guys! Sorry we keep missing these events! -The Heffs
$100.00 RBRobin and Tom Brown
Dear Greg and Weny, You and your sweet Penny are in our prayers often. Wishing you continued strength and hope in your fight for Penny and others battling Dravet.
$25.00 KDKaitlin Drexler
$100.00 DPDavid Platt
$25.00 SVSam & Mike Volpe
BLBen Levine
$6,000.00 FCFidelity Charitable Donor-Advised Fund
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raised of 5k